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Year : 2020  |  Volume : 9  |  Issue : 3  |  Page : 1296-1301

Common data elements of breast cancer for research databases: A systematic review

1 Department of Health Information Management, School of Health Management and Information Sciences, Iran University of Medical Sciences, Tehran, Iran
2 Department of Health Information Management, School of Management and Medical Information Sciences, Iran University of Medical Sciences, Tehran, Iran
3 Assistant Professor, Radiation Oncology, Oncophathology Research Center, Faculty of Medicine, Iran University of Medical Sciences, Tehran, Iran

Correspondence Address:
Dr. Maryam Ahmadi
No. 6, Rashid Yasemi St., Vali-e-asr Ave., 1995614111 Tehran
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Source of Support: None, Conflict of Interest: None

DOI: 10.4103/jfmpc.jfmpc_931_19

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Background: Common Data Elements (CDEs) are data-metadata descriptors used to collect research study data. CDEs facilitate the collection, processing, and sharing of breast cancer data. This study intended to explore the CDEs of breast cancer for research databases and primary care systems. Methods: This study was conducted using systematic search and review. This systematic literature review covered PubMed, Scopus, Science Direct, SID, ISC, Web of Science, and Google Scholar search engine. It included studies in English language with accessible full-text from the beginning of 2007 to September 2019. Results: Reviewing 25 studies revealed that 52 percent of studies were carried out in the US and most studies were conducted between 2013 and 2015. The most domains for using CDEs were: Pathology Report and Registry. The CDEs of breast cancer for research databases were categorized into three categories namely clinical, research, and non-clinical and indicate the importance of these data elements. Most of the studies focused on creating and deploying clinical CDEs as physical examination, clinical history and pathology data. Conclusion: The integration of biomedical and clinical data relevant to breast cancer enhances the power of research variable analysis and statistical analysis, thereby facilitating improved knowledge of effective therapeutic interventions. Also CDEs used to collect, store, and retrieve patient data in various health setting such as primary care and research databases.

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